Ethical and Practical Issues Associated with Aggregating Databases
نویسندگان
چکیده
منابع مشابه
Ethical and Practical Issues Associated with Aggregating Databases
The goal of “personalized medicine” relies upon defining the genetic variation responsible for disease susceptibility and response to therapy [1]. For most common human diseases, the contribution of a single sequence variant to disease susceptibility is typically small, and can only be detected with data from large numbers of people [2]. Practically, this necessitates collaboration among invest...
متن کاملEthical and Privacy Issues in Genetic Databases
With the recent advances in genetic and computer technology, enormous databases containing genetic information have become available for research and other purposes. An example of such databases is the Icelandic Health Database containing health and genetic records about the total population of Iceland. This has raised many privacy and ethical questions, both among health professionals and the ...
متن کاملE-Therapy: Practical, Ethical, and Legal Issues
E-therapy is a term that has been coined to describe the process of interacting with a therapist online in ongoing conversations over time when the client and counselor are in separate or remote locations and utilize electronic means to communicate with each other. It is a relatively new modality of assisting individuals resolve life and relationship issues. E-therapy utilizes the power and con...
متن کاملEthical and practical issues with opioids in life-limiting illness.
Effective pain relief, especially at the end of life, is a primary ethical obligation based upon the principles of beneficence, nonmaleficence, patient autonomy, and particularly the concept of double effect. The pragmatic foundation of pain management begins with a complete assessment, which incorporates "WILDA" (words, intensity, location, duration, aggravating/alleviating factors) and consid...
متن کاملPractical guidelines addressing ethical issues pertaining to the curation of human locus-specific variation databases (LSDBs)
More than 1,000 Web-based locus-specific variation databases (LSDBs) are listed on the Website of the Human Genetic Variation Society (HGVS). These individual efforts, which often relate phenotype to genotype, are a valuable source of information for clinicians, patients, and their families, as well as for basic research. The initiators of the Human Variome Project recently recognized that havi...
متن کاملذخیره در منابع من
با ذخیره ی این منبع در منابع من، دسترسی به آن را برای استفاده های بعدی آسان تر کنید
ژورنال
عنوان ژورنال: PLoS Medicine
سال: 2008
ISSN: 1549-1676
DOI: 10.1371/journal.pmed.0050190